Okay. I’ve waited a while to put my 2-cents in on this topic. People are being so rude and mean about it that it’s hard not to let it get to you and make your head explode or just want to have a breakdown and cry.
Some parents are wanting to change the name of Type 1 Diabetes because they don’t like how misleading headlines say that you can cure diabetes lead to conversations from random people and hurtful comments from innocent-ignorant-to-the-truth people lead people to believe that all diabetes is caused by sugar and weight and all that mess. But you know what? Neither is Type 2.
More and more studies are showing that Type 2 may also be an autoimmune disease, just a different form. So what is your basis now? And don’t you think it’s being slightly hurtful to those who are type 2? I have plenty of friends who are type 2, many whom I have met and have not met yet I love to death as if they were my own brothers and sisters. At the end of the day, we all prick our fingers, check our sugars, monitor insulin levels, and supplement as needed. We all have to watch food calorie and carb intake, and exercise to maintain the best health as possible.
And yes, they are both very different as that weight can be a contributing factor, but not always. There are many, many stories – one lady of whom was a commenter on a much older post who said she was diagnosed while being fit as a fiddle and training for a triathlon – of people who are otherwise in great health, in perfect weight range, and are active that “get” Type 2.
If you’re so against the names being similar, what do you propose for a name that would both unite and discern between the two? Since they are so similar yet so different? You can’t simply state that you/they have Autoimmune Diabetes because that still can refer to either type. And Juvenile-Onset Diabtetes (JOD) is out the door because Type 1 can be diagnosed at anytime. Beta-Cell Destructive Diabetes? BCDD? Nope, because over time, the beta cells of the pancreas stop working in Type 2.
And what is it really doing to matter? People who see you or your child pricking their finger are immediately going to know it’s because you/they have diabetes and that’s where their assumptions are going to start. I get it. I do. The hurt from others who assume that you did this to yourself or to your child because of what the media teaches them is awful. It’s painful. I’ve dealt with it my whole life. But I can tell you, it’s not going to change someone’s perception one iota because they’re still going to ask if you/they can/can’t eat that or if you/they lost weight would it go away. My husband’s friend is a physical therapist and has known I have diabetes since she met me and still asks me if I “can eat that”. It hurts. But telling her I have (insert new name here) verses Type 2 isn’t going to matter in the end.
Last time I checked, we all proudly showed the Blue Circle everywhere. It is a symbol of unity. We all work together each November, especially on the 14th – Dr. Banding’s birthday (the co-founder of insulin.. you know…that stuff that keeps both type 1s, type 1.5’s, type 2’s, and some gestational diabetics alive). We wear blue on Fridays and post our pictures in support for others. We “unite for diabetes awareness”. We need to be building each other up. We’re all blood-relatives in that sense. Why would you want to run your brothers and sisters into the ground and treat them just as you have been treated? Or worse (as I’ve seen some act)? If it goes through, there will be so many wonderful, loving people lost in what we call a great supportive online community. Is it worth that?
Stop the fighting. Stop the division. It’s not the right answer.